One Drawer A Day

This is the second night in a row I haven’t been able to fall asleep, in spite of exhaustion that seems to be melting my body into a puddle. And my usual trick of taking extra vitamin K and eating cereal and/or corn chips didn’t work, so I’m up again, trying writing, though the extra meds are making me woozy and distractable and getting the corn chips into my mouth seems more important than getting the words on the screen.

A friend asked me recently what it feels like to write. I couldn’t really answer, other than to say that there’s a release as all that’s been built up in the writing channel gets let go. But I don’t feel it, it just is. I asked some writer friends, and they were as stumped as me by the question. None of us feels as if we write. We are instruments for expressions that are just there. Not that we don’t work hard at our writing. The will involved in shaping words into their most coherent, lively, exact and punchy shape takes attention and revision, but it’s still just there, waiting for us to find it.

And perhaps my insomnia is because I’m not writing about the enormity of what David and I are in the midst of. Again, it’s late, I’m up while David sleeps and no one else is here in this big house. David can’t remember ever being alone in this house before. There is a hoarded, piled mess to be sorted through where his mother has sat for the last several years, mostly lost in her wanderings through magazines and calatalogues and books and bags.

Today we found 19 boxes of tissues that had been lost among the stacks of magazines and newspapers and books. I haven’t counted the Vera Bradley bags but there must be a dozen at least, all stuffed with further bags and newspaper plastic sleeves folded and paperclipped then wrapped with papertowel and tucked in an inside pocket. In one bag I found a tissue box cut into different size squares and held together by a clip. I’m using a piece as a book marker.

There are 22 caes of Coke Classic in cans in the garage, 19 gallons of windshield washer fluid and two cases of tissue paper. There is a case of Cheezits on the porch and 10 jars of instant coffee. 69 cans of soup. And these are just the big, visible things. We opened one drawer last night and found such a wide and varied assortment of items we thought of starting a blog – One Drawer A Day.  Each day we’ll open another drawer and recount the contents.

So tomorrow, the contents of one drawer. And there must be 100 drawers in this house.

What to Say

I am rarely speechless.  There is a constant language motor in my brain, translating all of my experiences into essay openings, blog posts, poems, any collection of words that conveys what’s churning in that channel.

But the last four days have left me mute, except to say, I’m mute.  Tonight David’s parents’ house is quiet.  His father is in the rehab unit of the hospital, recovering from his stroke.  His mother is at County Meadows, in the Connections Memory Support program. What bland words to describe a facility that can handle what we couldn’t — a despairing, delusional, depressed women with dementia, yet enough spirit and understanding left to know on some level what was happening  and to temper escalations that could have made the transition so much worse.   The last four days of everything we had to do to make this happen are still too fresh for me to sort out in any meaningful order of language.

But I can say this.  As an advocate for over 30 years saying no one ever has any right to hit someone else, when David’s mother whacked me on the leg with her cane (it didn’t hurt at all) as we were leaving her at Country Meadows I thought, “Good for her.”

Details

It’s been a trying day, frosted with more bad news.  In spite of the difficulties, I noticed that the Japanese maple tree in the yard of David’s parents’ house is dripping with red seed pods, like a pink petticoat peeking out from under the maroon leaves.

Advice from David’s mother today.  “Oh, don’t get old, it’s really irritating.”

David’s mother is laughing and just brought me a photo of Rihanna from the current issue of People magazine — she has hot pink boots with lime green high heels on, matching her heavily-beaded two-piece bathing suit, and fishnet stockings.  “Just in case you were looking for something to wear this summer,” she said, still laughing.

 

 

If I Could Move My Mind Backwards

“People are living too long,” my mother said to me when I called her this weekend, to tell her about David’s father’s stroke, and that we were heading to Lancaster to help.  My parents have lost many friends over the past decade, and watched many more slide into increasing incapacitation.

But is it that people are living too long, or are we keeping people alive too long, or is it just that life is essentially hard, and aging is a difficult process with inevitable loss at the end?

When we arrived in Lancaster yesterday, David’s mother looked up at us from her chair with red, tearful eyes.  She’s bewildered and scared, the knowledge of the fundamental change coming in her life lying like a hard weight at the bottom of the sea she swims in, bits of reality floating by that she’s able to hang on to.

“If I could move my mind backwards I’d be able to understand how I got here,” she said, revealing the magical thinking that some different turn somewhere could have made a difference, alongside the awareness that there is no going back, and we’re only here.   Now.

Summer Flowers

It’s quiet on the back deck this morning.  I’m the first one up and enjoying the extra moments of ease and the brilliant fuchsia flowers in the big pot.  Potted summer flowers on my deck and porch are among my favorite parts of summers, and this pot is self-watering so I can leave it where it is, even when I’m away.

The real marker of what’s going on for me right now is that all the potted flowers for the front of the house and the two lobelia I keep on tables on the back deck have stayed tucked into a corner of the porch all weekend.  They make a lovely mass of pinks and purples and white, but ideally they’d be spread on tables and the steps and front entrance, welcoming people to the house.

When we got home from the shore a week and a half ago, I moved all the potted petunias and begonias and coleus and lobelia out into the sun.  I’d put them back in a corner of the porch when I went away, because otherwise they need to be watered every day.  Three days later, I was carrying them all back into the shaded corner, getting ready to go to Puerto Rico for a meeting of the National Sexual Violence Resource Center Advisory Council, one of the boards I’m staying on.

When I got home from Puerto Rico on Friday, I knew I’d be leaving again in a few days, and decided to skip the spreading of the flowers, knowing I’d just be gathering them all into the corner again, and I have enough to do as it is.  David and I are headed to Lancaster, to help pick up the pieces of the wreck from his family “falling off a cliff” as he describes it.  It’s no worse than what many friends of ours have managed with aging parents, but now that’s it’s here for us to manage, it feels like a lot.

So for now the flowers will continue to bloom, face out towards the west where the late sun angles in under the porch roof to reach them.  Not enough to dry out the pots, but enough to keep the blossoms bright.

Man Plans, God Laughs

Among the laughable plans of man are airline schedules.  This is not the first post I’ve written on this blog while waiting for a late plane at the Philadelphia airport.  But this Yiddish proverb is reverberating much more deeply than the late plane level.

David got off our plane from San Juan here and ran to catch a train to the 30th Street Station in Philadelphia, to get a train to Lancaster.  Wednesday night, after a delightful night swim in the lit pool at the hotel in San Juan, a tiny bit of playing for me in a week heavy with meetings, David got a call from a name he didn’t recognize.  “Who’s Donna?” he asked.   Who would be calling him at 9:30 at night?

“Donna is the name of the woman who helps your parents,” I answered, so he called her back, and got enough information to conclude his father was having a stroke.  He was right.  So now our plans to go to Lancaster the week after next, to help his father arrange additional care for David’s mother whose worsening health is becoming too difficult for him to manage on his own, have changed to taking each day as it comes.  Today, David getting to Lancaster and me going home was as far as we could plan.  David’s father is in the hospital and stable and there are enough family members and friends there to make sure his mother is okay, so I don’t need to be there right now.  Better for me to be home — there are house and garden chores and Adrienne and Matt and Emilio are coming.

On the plane from San Juan we started trying to figure out the next couple of weeks — thinking through the plans we have, when David’s brother will need to leave, when it would make sense for us both to be in Lancaster, for how long, what will we be doing, what’s going to happen. . . .  We gave up.  I’m going home and David is on a train.