Deathaversaries: When Dates Line Up

 

This deathaversary season (what Adrienne, Sam and I call the anniversary of Eric’s, or anyone’s, death) has felt harder than other years. Or do I say that every year? I don’t think so.

The accumulation of other losses, the spread of grief in my circle of friends and family from those losses, and the communal dismay of the majority of Americans at the continued display of arrogant greed, racism, sexism, homophobia, xenophobia (okay, I won’t go on forever) among the white fuckboys currently trying to run/ruin our country all contribute I’m sure.

But I suspected dates were lining up in a way to remind exactly of what was going on 11 years ago, when Eric was diagnosed with metastatic cancer just before Passover. I was right.

David and I had a busy weekend, spending time with my family to celebrate Easter in a decidedly secular way then coming home to host a Seder with a group of friends we’ve been celebrating Passover with for many decades.

Wasn’t this the weekend in April 2006 that we had a much diminished Seder after Eric got home from the hospital with his grim diagnosis? We’d planned to host the Seder with friends that year, but had called it off earlier in the week when we understood Eric’s back pain and accelerating fatigue was from bones full of cancer. Instead of a dozen friends seated around the table, we had a small family Seder, using a two minute Haggadah someone had sent to Adrienne. Eric sat at the head of the table as he always did at Seders, leading the ritual telling of the story of the Jew’s exodus from slavery in Egypt, embellishing the minimal text with his own knowledge of Jewish history and custom.

Yesterday afternoon when David and I got home I pulled out my folder of calendars and wasn’t surprised. Yes, the dates line up. The day Eric got home from the hospital in 2006 was Friday, April 14. We had our small Seder on April 15. This year David and I hosted our Seder on Sunday, April 16.

No wonder I’m feeling the presence of sorrow. The 2006 calendar is repeating. The sun is at the same angle, birdsong is rising out of the fields in the morning at the same pitch, the brook out back is running high and hard, and the red buds on the maple tree out front are fattening into their familiar, fuzzy flowers. On some level, my body takes this all in and connects it with that scared and bewildered body 11 years ago.

There is a difference in the Jewish calendar though. Passover is ending today, not beginning as it was in 2006. Tonight I’ll light a Yahrzeit candle, which I just learned is a tradition on the last night of Passover.

How fitting.

 

Early Spring Tableau

My desk as this early spring afternoon slips over to dusk — Belvenie on the rocks, in a lovely tumbler Eric bought. He would approve.

My sketch book with a drawing of tulips I bought yesterday. Last week I figured out how to draw a leaf turning over on itself; I followed the contour line through the flip, added a bit of shading, and there it was. I’m practicing, still drawing almost every day.

Not Sunday. Under the sketchbook is my bib from the NYC half marathon, on its way to getting pinned on the decidedly not-decorator-worthy-wall of homasote in our bedroom from back in the days David was seeing if the room would work as a studio. It didn’t. But having a wall of fiberboard to tack up race bibs and Emilio drawings and sketches and poems and cards and posters is too wonderful a thing to take down. Two weeks ago David put up homasote over the art desk in my study.

As I ran down the West Side Highway towards the Battery on Sunday, sun on my face and the wind at my back, I knew I was probably going to make it to the finish line fast enough to qualify for the race next year, but my right knee and left thigh and left, blistered foot hurt.

So I let them go. I remembered what Sam told me after he ran an 11 mile trail race a few weeks ago. Describing his fastest stretch, running downhill after a grueling, steep-as-shit climb, he said, “I was flying. My body was gone.” A faster song came on my playlist and I picked up my pace.

1:58:17. That’s 31 seconds slower than last year. I’ll take it. It gives me 3 minutes and 43 seconds to come under the 2:02 qualifying time next year, and the year after I’ll be 65 and get another 10 minutes. With my time on Sunday I’d have been fifth in the 65-69 age group. The number of women running dropped from 162 in the 60-64 group to 53 who were 65-69. Two thirds fewer. Can I keep running into that age group? That fast?

In the first years after Eric died I would have laughed at myself for making plans to place in races two years out. Where do plans get you?

But I like the idea that by keeping myself on the road I could get closer to winning, even though being able to run 13.1 miles is winning enough.

 

#daylightsavingstime

The Truth About Death
Cover painting “Grace” by David

My conversation with Adrienne about daylight savings time started on Instagram. Under her photo of scrambled eggs and coffee she wrote daylight savings is weird. #theend. When I commented I want my hour back she replied every year! Time for the poem from 10 years ago!

Yes, Adrienne has listened to me complain about this lost hour all her life. It’s such a let down after that extra hour (bonus galore!) we get in October.

I’m not alone. Twitter is full of complaints today. Mamas, how are your #daylightsavingstime naps going? (Accompanied by a photo through a door of a child standing in a crib playing with a mobile.) I remember those days.

And, as always on Twitter, there’s politics and humor. You didn’t lose an hour of sleep # just redistributed it to someone who needed it.
Losing an hour of sleep means you have to sleep in, right?
I woke up and it was like noon wtf
low key wishing we lost the next four years vs one hour of sleep last night.
so do i have one more or one less hour to be high today?
Well, at least the clock in my car is right again…

There was a suggestion we all chill out by Relaxing Back Into Soothing Stillness w/this

Here’s what I had to say about it ten years ago, the poem Adrienne recalled. I wrote it the weekend Sam and I helped her move to live with Matt in NYC. March 2007, in the midst of the writing fever that produced The Truth About Death, less than a year after Eric died. I could feel the raw pain coming up off the pages as I looked through the manuscript for this poem. What a time.

Moving

Our daughter is going to the epicenter, someone is always
going somewhere, I can’t make small talk, I talk too much,
I am following the little red car, I can do anything I want,
I am a sparrow feeding in the bushes, the promised manna,

such pain to get here. Highways, cars, family, the irrevocable
center, flip your hand, wave off the evil eye, not evil, scary.
There is a blue balloon floating, this song is the tits, this song
is the bee’s knees, it’s if I had wings. I’m still mad

about the hour they took away two weeks ago. There are bells
ringing, it’s 6:00 p.m., the boys are watching college hoops,
the buildings out the window fall down in cubes, gardens
tucked into ledges, trees and statues below, a lion and a nymph

holding bounty, a set table in a room of glass, birds, planes
lifting west. I dance with a maenad, I dance by myself, drive fast
with my family. A lovely and ancient tradition. At dinner we discuss
predictive text, our son never finds his phone, our daughter’s lover’s

mother knows the pre-revolutionary Russian for lovely,
beautiful – veeleekalyepnah. When she found her grandfather’s book
of Torah commentary it opened to her son’s portion. Go forward
and be a blessing unto the world. Never enough, never enough.

Yom Kippur Afternoon

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For five years — 2010 to 2014 — I did a blog post on or about Yom Kippur. I missed last year, I missed all of the High Holy Days last year. On Rosh Hashanah I was in Massachusetts with Chris, in her last days, and didn’t even consider leaving to go services in NH. Yom Kippur was less than a week after Chris died and I wasn’t yet able to face so many people I know asking how I was. Would I lie and say fine, or be honest and tell them my sister had just died and it had been a long, difficult summer, helping to take care of her and watching as another loved one disappeared into the fog of cancer? Rather than answer that question, I stayed home.

Now I’m fasting and ruminating, my usual Yom Kippur afternoon. Last week at Rosh Hashanah services I felt Eric sitting by my side. I kept seeing the sports jacket he always wore to the Temple, because he would ask what he should wear and I’d suggest the brown jacket with black and tan threads woven into a tiny check design. My favorite. When I got home I took out the jacket — one on the few pieces of Eric’s clothing I’ve saved — and hung it in my study. I can see it now, facing me as I sit at my desk.

Since attending Kol Nidre services last night, and through this morning’s service, I’ve been thinking about forgiveness, contrition, sin, wrongdoing, right action, justice and peace and regret, which is what we’re meant to consider on this solemn day.

The Rabbi’s sermon last night was about regret, and how people more often regret something they didn’t do, a risk they didn’t take, a goal they didn’t fully commit to, a hand they didn’t reach out, a letter they didn’t write. I remember how often Eric said, in the last weeks of his life, as he faced his death, “I have no regrets. But I’m having so much fun living, I’m not ready to be done.”

I’m certainly not ready to be done either, but I can’t say I have no regrets. Like most people, my greatest regrets are about things I didn’t do — a card I didn’t send, a story I haven’t dared to write, a call I didn’t make. I’ve also judged people according to my version of the narrative we share, not challenging myself to see the world from their eyes. It can be too easy for me to think I’m the one who has it right.

Yom Kippur is about being honest with ourselves, digging deep and admitting to the ways we’ve not been our best selves, then using that knowledge, not to be ashamed or give ourselves a hard time, but to do better.

I can do better. Eric’s jacket helps me see that.

 

Posthumous Guest Blogger — Peter Menard on 5FU

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I’ve never had a guest blogger, though many of you know I’ve curated my sister Chris’s blog since she died, posting mostly guest blogs.  One of the most popular guests was my good friend Peter Menard, who shared his own journey living with metastatic cancer.

Now, posthumously, Peter gets to be the first guest blogger here.  Peter wrote this in the spring intending it for my blog, but the tragic, untimely death of a much much too young friend made us decide it wasn’t the right time to put it up.

Peter died on August 23 and now it feels like the right time to share this post.  Peter was smart, brave, deeply curious and very funny — as you’ll see.

5FU — by Peter Menard

Are you worried about Zika virus? Lyme disease, mosquitos & ticks?
Want to keep up with your hipster friends on the body-piercing frontier?
Is your weight creeping up on you, even faster than the proverbial 10 lbs. a decade?
Do you have cravings for food that you shouldn’t indulge in?
Lastly, are you worried that you aren’t producing enough mucus to protect your digestive system?

You may want to consider 5FU, a strong medicinal agent developed for some other diseases, but found to have some very interesting side effects.

5FU has been found to kill ticks when they dare to latch onto you. And mosquitoes won’t even light on you, perhaps because they can smell the 5FU, and they want none of it.

Make your hipster friends envious when you flaunt your port, a body piercing that is a direct connection to your own heart.

5FU is a very effective appetite deterrent. You won’t be able to finish any restaurant servings at one sitting. You can live for weeks on doggie bag food. And not to mention the slimming down of your waist line (and your arms and legs too – gets rid of unsightly bulging muscles).

Please note that there are a few quibbling side effects, such as nausea, a lack of a will to live, and a reduced social and work life. Working with your physician, you may be able to effectively ameliorate these side effects.

ENDORSED BY A LEADING REPUBLICAN PRESIDENTIAL CANDIDATE!

“I TAKE 5FU BEFORE MY BIG CAMPAIGN EVENTS. IT HELPS ME KEEP MY GIRLISH FIGURE, AND FRANKLY I THINK IT REPELS ILLEGALS AS WELL AS THE ZIKA THAT THEY CARRY. IT ALSO MAKES MY HAIR THIN AND LIGHT, AND EASIER TO MANAGE. AND WHEN I WANT TO SPIT ON DESPICABLE MEDIA STOOGES, 5FU HELPS FILL THE TANK SO TO SPEAK.”

Ask your doctors if 5FU might be right for you.

For those of you who’d like to know more about Peter, here’s his obituary, written, of course, by him.

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Peter Menard (65) of Deerfield unlaced his skates for the last time on Tuesday August 23, 2016. He hopes to skate on the moat around St. Peter’s Pearly Gates when it freezes.

Peter was able to get himself and traveling companions into international incidents in several languages, though he preferred to be lost and confused in Italian, treasuring its penchant to sing.

Peter had the honor to pour libations invoking the ancestors at family weddings, beseeching the ancestors to bless the newly-weds, (and hoping for the ancestors’ welcome when he joins them).

He had great friends from Canton High School in NY, his Canadian brother Lanny from Brown University, West African Peace Corps compatriots, fellow hockey players, Crossfit buddies, and denizens of Deerfield. After marrying 33 years ago, Peter and Anne took a 12-month honeymoon trip around the world, quite an adventure.

Peter’s 5 years in Africa as a Peace Corps volunteer/staff fostered his appreciation of small-town life, as well as his trek across the Sahara. He eased back into the States as a commercial fisherman on George’s Bank, then a carpenter for Don Booth in Canterbury, next joining the Deerfield family firm P. K. Lindsay Co. in national sales. His last work was as a real estate agent with his sister at Parade Properties.

Peter’s wife Anne Burnett helped him so much with his cancer; as did sons Michael and wife Carissa, and David. Likewise mother Frances Menard, sisters Anne Menard and Guy, Jeanne and Kevin, Carol and Carl, Cathy and Betsy, Mary and Larry, brother Matthew Menard and Wendy; nephews and nieces Nick, Lindsay, Wes, Cam, and Edie, stalwart Galoots all. Peter thanks extended family and friends for their care.

A service celebrating Peter’s life will take place on Saturday, September 10, at 11:00 a.m. at Deerfield Community Church, UCC, in Deerfield, NH. Afterward, a potluck reception will take place at the church. Continuing in the spirit of Peter’s generosity, you are invited to bring a dish to share.

In lieu of lowers, memorial donations may be made to Schools for Salone, PO Box 25314, Seattle, WA 98165 or Anne Burnett’s run of the Dana Farber half marathon on October 9.

The Fucking Firsts

Art by Adrienne
Art by Adrienne

My mother is still alive, a great blessing, though no easy thing for her.  Even healthy, being 91 takes a lot of courage — all the losses, the disobedient body that keeps getting older, the inevitable contraction of life as energy and mobility shrink.

But this is the first Mother’s Day without a mother for a number of people I love.  My kids and I called each approaching milestone in the year after losing Eric “another fucking first.”  Father’s Day, my birthday, our anniversary, the High Holidays, his birthday, Passover and then the first year was done, we were on to the sucky seconds.

The firsts are tough.  There’s all the navigation of the hole the missing person has left, “the space we leave behind” as my sister Chris said.  She asked us all to try not to miss her, to let life keep coming in to our hearts and not be worried about our love for her being pushed aside.  Because there’s room for all of it.

But there isn’t another mother for her sons, or for the baby who lost her mother just over a week ago, or for lots and lots of people I care about who’ve lost their mothers, many of them much younger than any of us think is fair.

Chris and Eric both believed fairness has nothing to do with it.  Shit happens, destructive cells get a foothold and go wild and bring down a healthy body, we lose people we love.

To all the people I love having a fucking first today, I’m sorry.  The first year can be so hard.  But you’ll get to the seconds and then the thirds and incredibly the tenth one day. And beyond, but today I’m thinking about the firsts and tenths. Ten still hurts but a whole lot less.

Onward.

The Power of Ten

 

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What is it about the years divisible by ten?  All the milestone birthdays are in increments of ten — people especially note turning 30 or 40, 50 or 60.  Money rolls out in increments of ten.  We celebrate anniversaries of major events in tens — marriages, assassinations, great scientific achievements, disasters.  Pretty much everything would be counted in tens if we used the metric system like the rest of the world.  Ten means starting again, because that second digit comes in, the need to go back to the first finger to continue keeping track.

I’m thinking about this because in May it will be ten years since Eric died, and right now it’s ten years since Eric began to be really sick, though we didn’t realize yet that he was dying.

Dawn has crept further and further into the night and now I’m waking up many mornings with light already in the sky, after months of being up for hours in the dark.  Birdsong comes along with the light, the beginning chatter of birds awakening to the next season, starting to build nests and call to each other to mate and start the whole cycle of birth and death again.  The rise in morning birdsong is burned into my psyche as signifying the rise in Eric’s cancer.  Birdsong = Impending Death.

Not very spring-like.  But there it is, the twittering of purple finches and melodic call of a robin and the chink of red-winged blackbirds.  I wrote a poem about it this morning, one of many in a long line of poems about what spring birdsong means to me now (like the first poem in The Truth About Death, which I posted here around this time last year).

But there’s a twist this year.  I also made a collage.  Does that have anything to do with the tenth anniversary of Eric’s illness and death?  Or is it simply the process of aging and getting better at giving myself permission to do things because I want to, because I have an urge to create in a different way, because I care less and less what it means and just want to do it.

I’m  signing up for a drawing class.  Maybe next I’ll draw the birds.

What I Kept

I love standing at my new desk, stroking a brush with long dark bristles across a collage of dried leaves, spreading acrylic varnish that’s both protective and adhesive.  The motion is methodic and fluid, comforting.  I’m making something, a physical object, following a non-speaking muse when choosing the placement of the leaves and ferns, the colors, moving shapes around until it looks right.

I’ve gone through many of the piles of paper and old magazines and cards in my study this week, organizing them by type, maybe some day by color or theme.  For now the old DoubleTake magazines (who remembers that incredible journal from the late 90’s and early 00’s of top-tier writing and photography, and what a blessing I kept them and then David wanted them in his studio and now they’re back with me), Lapham’s Quarterly (outstanding illustrations and graphics) and art advertising books from Santa Fe and the coast of Maine, are together on a shelf, along with other random magazines.  Postcards are sorted in cubby holes of a shelving unit I built in an adult education woodworking class 25 years ago, both new cards and antiques, including souvenir folders of cards from the 40’s, sets Eric’s father was mailing home when he was in the army during WWII.  Eric collected the antique Squam postcards.  I have decades of Mother’s Day and birthday cards from Adrienne and Sam.  Those I’m saving to save, not to collage.

“Where did these come from?” David asked when I made my first collage with the dried leaves earlier this week.  Our trip to Rockport, Maine in the fall of 2008, when we were only months in love and reeling from the death of David’s wife two months before, a quick cancer death like Eric’s. David and his wife were in the midst of a divorce when he and I met, but once she was sick he disappeared from my life to go back home and help.  It had been a hard summer, a terrible time for David’s family.  By the fall his back had given out and he could hardly walk.  That he and I were away together, alone, with trees full of red leaves in every imaginable shape of maple, had seemed miraculous.  I walked around the neighborhood where we were staying, carefully picked leaves and folded them in paper towels.  I needed to hold on to something beautiful.  Tucked in books I had with me, I brought the leaves home and somehow kept track of the pile of preserved fall and then there they were, in my study.

Or, my studio.  It’s been a very satisfying week.

Artifacts

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Announcing a New Son
SCHAIN — a son, Eric Hiram, to Mr. and Mrs. Raphael Schain (Natalie Cohen, formerly of this city) of 911 Cooke Street, Waterbury, on January 2.

On the back of the thickly laminated clipping, “Thank you for giving a cerebral palsy child the chance
to walk –
to talk –
to play.
Clipped from New Haven Conn Register”

I found it in an old hutch that I moved out of my study to make way for the new desk.  The cupboard was full of VHS tapes — Adrienne’s dance recitals, Eisner Camp summers, professional trainings.  The top drawer was stuffed with napkins (Eric often ate while he watched TV in this room), paperwork and power cords from long forgotten small electronics, two ancient, fancy calculators the kids needed for high school math, one gutted to its plastic shell.

The birth announcement was in the drawer, along with a child’s tooth wrapped in a note with handwriting I’m almost positive is mine.

Dear Tooth Fairy,
Mat would like a gemstone rather than money for his tooth. Thank you.

Was my nephew Matt staying with me when he lost a tooth?  I don’t remember that but it’s certainly possible.  But why didn’t I know how to spell his name?  Do I know a Mat?  I put the tooth, wrapped back in the note paper, in the box on my bureau with my kids’ teeth. What else could I do with it?

Cleaning up clutter can be an archeological experience.  Mother’s Day cards back to the 90’s, diaries and journals that go back to 1964.  I must have taken my 1967 diary from my sister Jeanne.  Her name is written in the front and there’s a bunch of torn out pages between March 20 and April 20.  I take over on April 24th.

April 26:  Wed.  Dear Diary, Boy, am I depressed.  Paul never pays any attention to me anymore.  I was president today.  I think David likes me.  I’m sure Morse hates me. Today at play rehearsal a kid commented on my weight.  I wish I weren’t so ugly.  Oh well, I’m miserable.  Luv, Gracie

I was president?  Hot shit.  But of what?

I still had a crush on Paul in my 1968 diary.

 

 

Day Fourteen — Tilting Back Towards the Sun

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December 21:  Black morning, lights over the kitchen table, coffee in my mug. Today the North Pole will finish its furthest tilt from the sun – 23.5 degrees. The sun hasn’t really been slipping down the horizon until it sets behind the old silo. We’ve been tilting away.

Yesterday David and I climbed Parker Mountain, the first hike we did together, on our first date, almost eight years ago. It had snowed the night before, heavy and wet, and we trudged up the first steep incline on snowshoes, me well ahead of him. Was I testing whether he could keep up with me? Probably. He didn’t climb as fast as I did, but he got there.

At the first peak we stopped and looked out over the coastal plain to Portsmouth, a plume of smoke from the tall chimney of the power plant, ocean a flat line behind it. David talked about his sadness, his worry about losing friends. I talked about losing Eric.

We’ve climbed that same trail probably 50 times since and yesterday was glorious. On the north side of the mountain, we started in shadow and climbed up into the sun. The trail was a pageant of sage lichen on gray granite, dark green hemlocks, shiny green white pine, brown oak leaves burying the path and then piled alongside, deep purple stalks of bare, scrubby blueberry.

By the time we got back to the car, it was twilight, leaning over in to dusk. David and I don’t talk all the time as we did on that first hike, as we did in the first months and even years we were together. But we still talk most of the time. So much happens in our lives and, for us, in our heads. There’s always plenty to sort out.