A Cairn for Chris

 

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My sister Chris died one year ago yesterday. A year seems like an impossibly long time for her to have been gone, and also impossibly short.  That’s the thing about death and the physical absence of the person — it can feel unreal, and so time gets distorted. Chris had been part of my entire life.  She was two years older than me, so she was here when I was born and somewhere in my sense of the world she is always here.

Except now she’s not.  Of course her absence feels much more acute for her husband and her boys — a life partner and a mother are gone, and I know how completely disorienting the loss of a spouse is.  The built-in companion on evenings at home, the warmth next to you in bed, the other parent to sort out worries about the kids — all gone. How to even make that work?

It was a great struggle for me and there are enough people in my life now who are living the same struggle that I know my experience wasn’t uncommon.  Others at the time who reached out to me, who’d lost a partner, confirmed it then.  “It’s like an out-of-body experience, isn’t it,” a colleague said to me at work one day.  His wife had died the year before.

It’s been ten years since Eric died and I’ve long since come back into my body.  But I remember being out of it, I remember being manic and obsessed with writing The Truth About Death, I remember drinking a lot and eating hardly at all, working out whenever I could and talking, talking, talking, as I tried to make sense of what my life was going to be. Losing a sister has been much less brutal — sad and disorienting in its own way, but not cry-myself-to-sleep-alone-in-bed sad.

There was a family trip to Chris’s memorial bench in Scituate, MA yesterday that I couldn’t be at, but I’m building a cairn for her in the woods, on the rock where I’ve built cairns for Eric.

My younger sister Meg texted me first thing yesterday and suggested we talk on the phone and read each other our letters — Chris wrote letters to her husband, to each of her boys, to each of us sisters and to our parents.  A common theme in her letters, and which she talked about at the end of her life, is her belief that she’ll always be with us.

“Know that I am not gone, only my physical presence is missing.  In the space I left is my love, energy, memories and shared history.  Things I would not trade for anything.  Enrich that space with new people, events and shared history.  I will be close by your side,” I read to Meg and she read similar words to me.  We cried.  We miss Chris, but she was right. Yesterday she was with us in her words and in the memories of her that Meg and I shared. She was with us as we talked about our commitment to being in the moment as much as we can, a lesson Chris worked hard to keep at the center of her own journey.

I just put another rock on her cairn, topped with a heart stone from the beach in Humarock, a favorite place for Chris.

 

Posthumous Guest Blogger — Peter Menard on 5FU

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I’ve never had a guest blogger, though many of you know I’ve curated my sister Chris’s blog since she died, posting mostly guest blogs.  One of the most popular guests was my good friend Peter Menard, who shared his own journey living with metastatic cancer.

Now, posthumously, Peter gets to be the first guest blogger here.  Peter wrote this in the spring intending it for my blog, but the tragic, untimely death of a much much too young friend made us decide it wasn’t the right time to put it up.

Peter died on August 23 and now it feels like the right time to share this post.  Peter was smart, brave, deeply curious and very funny — as you’ll see.

5FU — by Peter Menard

Are you worried about Zika virus? Lyme disease, mosquitos & ticks?
Want to keep up with your hipster friends on the body-piercing frontier?
Is your weight creeping up on you, even faster than the proverbial 10 lbs. a decade?
Do you have cravings for food that you shouldn’t indulge in?
Lastly, are you worried that you aren’t producing enough mucus to protect your digestive system?

You may want to consider 5FU, a strong medicinal agent developed for some other diseases, but found to have some very interesting side effects.

5FU has been found to kill ticks when they dare to latch onto you. And mosquitoes won’t even light on you, perhaps because they can smell the 5FU, and they want none of it.

Make your hipster friends envious when you flaunt your port, a body piercing that is a direct connection to your own heart.

5FU is a very effective appetite deterrent. You won’t be able to finish any restaurant servings at one sitting. You can live for weeks on doggie bag food. And not to mention the slimming down of your waist line (and your arms and legs too – gets rid of unsightly bulging muscles).

Please note that there are a few quibbling side effects, such as nausea, a lack of a will to live, and a reduced social and work life. Working with your physician, you may be able to effectively ameliorate these side effects.

ENDORSED BY A LEADING REPUBLICAN PRESIDENTIAL CANDIDATE!

“I TAKE 5FU BEFORE MY BIG CAMPAIGN EVENTS. IT HELPS ME KEEP MY GIRLISH FIGURE, AND FRANKLY I THINK IT REPELS ILLEGALS AS WELL AS THE ZIKA THAT THEY CARRY. IT ALSO MAKES MY HAIR THIN AND LIGHT, AND EASIER TO MANAGE. AND WHEN I WANT TO SPIT ON DESPICABLE MEDIA STOOGES, 5FU HELPS FILL THE TANK SO TO SPEAK.”

Ask your doctors if 5FU might be right for you.

For those of you who’d like to know more about Peter, here’s his obituary, written, of course, by him.

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Peter Menard (65) of Deerfield unlaced his skates for the last time on Tuesday August 23, 2016. He hopes to skate on the moat around St. Peter’s Pearly Gates when it freezes.

Peter was able to get himself and traveling companions into international incidents in several languages, though he preferred to be lost and confused in Italian, treasuring its penchant to sing.

Peter had the honor to pour libations invoking the ancestors at family weddings, beseeching the ancestors to bless the newly-weds, (and hoping for the ancestors’ welcome when he joins them).

He had great friends from Canton High School in NY, his Canadian brother Lanny from Brown University, West African Peace Corps compatriots, fellow hockey players, Crossfit buddies, and denizens of Deerfield. After marrying 33 years ago, Peter and Anne took a 12-month honeymoon trip around the world, quite an adventure.

Peter’s 5 years in Africa as a Peace Corps volunteer/staff fostered his appreciation of small-town life, as well as his trek across the Sahara. He eased back into the States as a commercial fisherman on George’s Bank, then a carpenter for Don Booth in Canterbury, next joining the Deerfield family firm P. K. Lindsay Co. in national sales. His last work was as a real estate agent with his sister at Parade Properties.

Peter’s wife Anne Burnett helped him so much with his cancer; as did sons Michael and wife Carissa, and David. Likewise mother Frances Menard, sisters Anne Menard and Guy, Jeanne and Kevin, Carol and Carl, Cathy and Betsy, Mary and Larry, brother Matthew Menard and Wendy; nephews and nieces Nick, Lindsay, Wes, Cam, and Edie, stalwart Galoots all. Peter thanks extended family and friends for their care.

A service celebrating Peter’s life will take place on Saturday, September 10, at 11:00 a.m. at Deerfield Community Church, UCC, in Deerfield, NH. Afterward, a potluck reception will take place at the church. Continuing in the spirit of Peter’s generosity, you are invited to bring a dish to share.

In lieu of lowers, memorial donations may be made to Schools for Salone, PO Box 25314, Seattle, WA 98165 or Anne Burnett’s run of the Dana Farber half marathon on October 9.

Youth

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As we moved in to summer I started crying, the light letting the sad memories in — how sick Chris was on the 4th of July last year, being in Humarock without Chris and thinking about what it’s like for her widower and sons to have that hole in their traditional family beach time, what it’s like for my parents.  But our family time in Humarock was also sweet, lots of family still gathered in a beautiful spot.

I don’t mind the crying.  It’s been balanced with the joy of having youth around me. Yesterday I sent Adrienne a chat and asked her to snap the kids for me through the day, happy enough just to see Emilio and Ava but knowing there was the bonus of two more children there over the weekend, adorable child video riches.  And I got to share those videos with the youngsters here, Melia and Mackenzie and a crew of their friends, of course not as young as the grandkids but still much younger than me, in lives that are still expanding and reaching out and full of energy and hope.

Not that I don’t reach out still, but more and more I’m content with what I know I love best.  Home, family, close friends, garden, time at my desk to write.  It’s not only me.  This is a researched phenomenon.  As people age, they more and more value time with a closer circle of people and experiences.  We’ve learned what we like and know there’s limited time left to enjoy it.  We get more careful about how to spend our time when there’s less of it to spend.

Being with our kids and grandkids is top of the list, always.  I realized this weekend David and I never mediate when we’re with our kids in spite of being regular mediators otherwise.  We don’t need it.

So my sad weekend was also a great weekend.  I love a full house, the crowd in the kitchen, the meals with multiple palates contributing to the taste, the conversations and laughing at stories, coffee and toast on the deck in morning sun, cocktails and beer on the porch in the evening. Now I have a line full of laundry, flags of the pleasure being with loved ones brings, soaking up the energy of youth

How lucky we are.

 

My Sister’s Chi

Me, Chris, Meg, Jeanne

Today Chris would have celebrated her 65th birthday. Instead, those of us who love her are remembering her and honoring her, as sad as we are.

But she’s also still here.  Chris was a committed practitioner of Qigong — postures, movement and breathing to bring life force in to your being for health and vitality. The name comes from two Chinese words: qi (or ch’i or chi) means the life force or energy that flows through all of us and everything, and gong means skill cultivated through practice.

Chris thought a lot about chi, about the life force, about how we’re all connected.  When she died, her chi didn’t disappear because her energy wasn’t bound by her body.  It flowed in to the life force that’s everywhere.  I used some of that chi today.

Sam did a 20k trail run two weekends ago — that’s over 18 miles, up and down mountains, on scrambly trails, not an easy run.  When he called, excited by how well he’d done, he told me how he uses chi when he runs — his own version of chi running.  When he’s in the flow and feeling good, he stores chi to use later if some part of him starts to hurt or if he’s lagging.  If someone passes him, moving smooth and fast and clearly in a good zone, Sam thinks, “Well that person has some chi to spare.  I’ll take a bit of that.”  Then he uses stored chi or borrowed chi to send to an aching knee or tired legs.

I loved the idea and thought of it today, just under 8 miles in to what I hoped would be at least a 10 mile run.  My knee hasn’t completely healed from whatever made it so cranky during the NYC half-marathon in March, and though I have another half-marathon to run in a little over a week, I haven’t been running much, wanting to give my knee time to rest.

The rest has been working.  Last week I was able to run over 7 miles without knee pain, the first time I’ve run more than 3 or 4 miles in many weeks.  I wanted to add 3 miles to that today, thinking that would mean only adding another 3 next weekend to do the half-marathon.

Heading into that 8th mile my legs were tired and my knee was cranking up.  And then I thought about it being Chris’s birthday and the energy she left behind, so much life force still to be used, and I concentrated on pulling her chi into me.  I felt a tingling rush of warmth through my body and Chris was right there, hovering over me as I ran another 2 miles — 10.2 miles, exactly what I’d hoped to do.

I’ve been texting with my sisters Meg and Jeanne today, touching base on this sad and happy day (the 6th birthday of one of Jeanne’s grandsons), and when I told them about my run my sister Meg reminded me it’s everyone’s chi.  Universal energy.  “We are all one,” as it says on Chris’s memorial bench.

The Fucking Firsts

Art by Adrienne
Art by Adrienne

My mother is still alive, a great blessing, though no easy thing for her.  Even healthy, being 91 takes a lot of courage — all the losses, the disobedient body that keeps getting older, the inevitable contraction of life as energy and mobility shrink.

But this is the first Mother’s Day without a mother for a number of people I love.  My kids and I called each approaching milestone in the year after losing Eric “another fucking first.”  Father’s Day, my birthday, our anniversary, the High Holidays, his birthday, Passover and then the first year was done, we were on to the sucky seconds.

The firsts are tough.  There’s all the navigation of the hole the missing person has left, “the space we leave behind” as my sister Chris said.  She asked us all to try not to miss her, to let life keep coming in to our hearts and not be worried about our love for her being pushed aside.  Because there’s room for all of it.

But there isn’t another mother for her sons, or for the baby who lost her mother just over a week ago, or for lots and lots of people I care about who’ve lost their mothers, many of them much younger than any of us think is fair.

Chris and Eric both believed fairness has nothing to do with it.  Shit happens, destructive cells get a foothold and go wild and bring down a healthy body, we lose people we love.

To all the people I love having a fucking first today, I’m sorry.  The first year can be so hard.  But you’ll get to the seconds and then the thirds and incredibly the tenth one day. And beyond, but today I’m thinking about the firsts and tenths. Ten still hurts but a whole lot less.

Onward.

Cancer Sucks and Is Mean As Shit

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Anthropomorphising cancer?  Right now it’s working for me.  The world lost a beautiful young woman today, way way too young.  She had a beautiful family, a wonderful husband, an adorable one year old daughter.  She lived less than a year from her diagnosis. Cancer sucks and is mean as shit.

My daughter, however, is awesome and very kind and wrote a beautiful blog post about this terrible loss.  Check it out:  Too Short.

Journals

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Journal Cover Collage by Chris

A not uncommon conversation for me over the years:  What are you going to do with your journals when you die, or before you die?  What instructions will you leave for whether or not they can be read, by whom, when, what can be shared?  Or will you destroy them all at some point?

A poet friend records current events and notable weather in her journals, because she plans to leave them to be read and she figures that’s what people will want to know about — what was happening in the world, not in her head.

Which is what my journals are full of.  There’s some recounting of events, but much of it is I’m anxious, I’m worried, I’m upset. . . blah, blah, blah.  Another poet friend admits the same.  “My journals are blah, blah, blah over and over.”  Not that the blah isn’t important, it is to us, that’s why we’re writing it.  But it probably would be boring to most other people, and would paint a false picture, anyway.

When my mood is mostly even and good I don’t journal much, I do it when I’m confused, when something is upsetting me and I need to figure it out.  I write in my journal when I’m anxious because the act of getting worrisome thoughts on paper loosens their uncomfortable grip a bit.  I’m honest in my journals about all the ways I’m quirky and irritable and over think the shit out of way too much.

So do I want anyone to read all of that?  Would anyone want to?  I’m talking serious numbers of journals — 82, including my blue plastic bound Ponytail Dear Diary with a brass lock (key long gone) from grade school.

Jon brought me three of Chris’s journals last week.  He wondered if I wanted to read them. He doesn’t want to right now, though he wants to keep the journals.  Do I want to read them?  Should I?  I’ve peeked in to them and so far haven’t read anything that I didn’t hear Chris talk about or haven’t read in her essays.  Chris didn’t hide her feelings and worries and struggles.  I loved that about her, her honesty about all of life, the joy and the hard road of living with metastatic cancer.

Chris took journaling classes in her last years, and in one she made a cover for the journal she was using.  It’s beautiful.  Right now it’s at the top of the journal stack on the side of my desk.  I love looking at it.  I don’t know if I’ll read it.

The Power of Ten

 

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What is it about the years divisible by ten?  All the milestone birthdays are in increments of ten — people especially note turning 30 or 40, 50 or 60.  Money rolls out in increments of ten.  We celebrate anniversaries of major events in tens — marriages, assassinations, great scientific achievements, disasters.  Pretty much everything would be counted in tens if we used the metric system like the rest of the world.  Ten means starting again, because that second digit comes in, the need to go back to the first finger to continue keeping track.

I’m thinking about this because in May it will be ten years since Eric died, and right now it’s ten years since Eric began to be really sick, though we didn’t realize yet that he was dying.

Dawn has crept further and further into the night and now I’m waking up many mornings with light already in the sky, after months of being up for hours in the dark.  Birdsong comes along with the light, the beginning chatter of birds awakening to the next season, starting to build nests and call to each other to mate and start the whole cycle of birth and death again.  The rise in morning birdsong is burned into my psyche as signifying the rise in Eric’s cancer.  Birdsong = Impending Death.

Not very spring-like.  But there it is, the twittering of purple finches and melodic call of a robin and the chink of red-winged blackbirds.  I wrote a poem about it this morning, one of many in a long line of poems about what spring birdsong means to me now (like the first poem in The Truth About Death, which I posted here around this time last year).

But there’s a twist this year.  I also made a collage.  Does that have anything to do with the tenth anniversary of Eric’s illness and death?  Or is it simply the process of aging and getting better at giving myself permission to do things because I want to, because I have an urge to create in a different way, because I care less and less what it means and just want to do it.

I’m  signing up for a drawing class.  Maybe next I’ll draw the birds.

What I Kept

I love standing at my new desk, stroking a brush with long dark bristles across a collage of dried leaves, spreading acrylic varnish that’s both protective and adhesive.  The motion is methodic and fluid, comforting.  I’m making something, a physical object, following a non-speaking muse when choosing the placement of the leaves and ferns, the colors, moving shapes around until it looks right.

I’ve gone through many of the piles of paper and old magazines and cards in my study this week, organizing them by type, maybe some day by color or theme.  For now the old DoubleTake magazines (who remembers that incredible journal from the late 90’s and early 00’s of top-tier writing and photography, and what a blessing I kept them and then David wanted them in his studio and now they’re back with me), Lapham’s Quarterly (outstanding illustrations and graphics) and art advertising books from Santa Fe and the coast of Maine, are together on a shelf, along with other random magazines.  Postcards are sorted in cubby holes of a shelving unit I built in an adult education woodworking class 25 years ago, both new cards and antiques, including souvenir folders of cards from the 40’s, sets Eric’s father was mailing home when he was in the army during WWII.  Eric collected the antique Squam postcards.  I have decades of Mother’s Day and birthday cards from Adrienne and Sam.  Those I’m saving to save, not to collage.

“Where did these come from?” David asked when I made my first collage with the dried leaves earlier this week.  Our trip to Rockport, Maine in the fall of 2008, when we were only months in love and reeling from the death of David’s wife two months before, a quick cancer death like Eric’s. David and his wife were in the midst of a divorce when he and I met, but once she was sick he disappeared from my life to go back home and help.  It had been a hard summer, a terrible time for David’s family.  By the fall his back had given out and he could hardly walk.  That he and I were away together, alone, with trees full of red leaves in every imaginable shape of maple, had seemed miraculous.  I walked around the neighborhood where we were staying, carefully picked leaves and folded them in paper towels.  I needed to hold on to something beautiful.  Tucked in books I had with me, I brought the leaves home and somehow kept track of the pile of preserved fall and then there they were, in my study.

Or, my studio.  It’s been a very satisfying week.

The Last Time You Cried and Why

Image courtesy of The Reluctant Grandmother
Image courtesy of The Reluctant Grandmother

I send writing prompts to three friends every Monday.  It started as a way to help a friend who wants to be writing more in order to remember things about her husband who died last year.  Then a writer friend talked about not writing right now and wanting to, so I offered to include her in the prompts.  When another friend saw the result of a prompt I’d sent the second friend, she wanted in too.  So, I’m up to three.

But today has been an off one for me.  A nagging dread has kept me from falling into mindful/mindless absorption in making a collage, or reorganizing my study or fiddling with poems. Is it that I’m working on my memoir, writing about a particularly difficult patch in the months after Eric died, a part of the story I haven’t told yet, which means reading those journals again and living with some of that pain present?  Not that it isn’t present on some level anyway.

I was having trouble coming up with a prompt for my friends until I got in the shower late this afternoon and started scrubbing at the nasty scrape I got on my knee when I tripped running last week.  It hurt, I started to cry, and I thought, ah, the prompt.  Write about the last time you cried and why.

I remembered the side of Chris’s face swollen with scrapes last spring and I cried more.  I’d talked to Chris the day before and she’d told me, “I’m not having a very good day.”  She’d fallen that weekend out walking with her family and was sore and discouraged.  The next day she and Jon came to visit unexpectedly, arriving while I was at an appointment.  When I got home and went out on the back deck to greet them I had to suck in my shock.  Chris looked so banged up and battered, with red scratches covering one side of her face. Battered by cancer.

In the shower I thought about how much physical limitation Chris had to live with, and then she still died.  I cried.  I cried because I’m close to a lot of people who have a serious illness, love someone with a serious illness, or have lost someone to illness.  I cried because the list of people I include in my healing meditation every day mostly die rather than get better and then I include on the list those left grieving.  I cried because my knee hurts and is taking a long time to heal and interferes with much of what I want to do.

Then I turned off the shower, dried off, dressed my knee and sat down to write.  To myself and to my friends.